A Health Lab organized by Pierre-Fabre and La Dépêche du Midi Laboratories brought together health players and patients around the issue of commitment to patients.
How can the needs of patients be put at the heart of the health care provider’s concerns?’pharmaceutical and dermo-cosmetic industry: it is around this very rich subject that many actors, patients, representatives of’associations, doctors and specialists in dermatological and oncological diseases, brought together by Pierre-Fabre Laboratories during a Health Lab at La Dépêche du Midi.
Pierre-Fabre Laboratories are at the forefront on this subject: the Eczema Foundation, for example, collaborates with health professionals and supports patients in an alliance between them in order to’help patients cope better with eczema. “We strive to understand the patient, and provide him with an appropriate response, deciphers the doctor Markéta Saint Aroman, director of Patient Centricity Corporate Pierre-Fabre. And we associate it with therapy. »Gone is the vertical relationship between carer and patient. From now on, the two exchange, the patient being fully integrated in the development of his therapy.
“The patient needs to understand how it works, how to use the products, how to interpret the signs and aggravating factors,” confides Fanny Sentenac, Patient Expert on atopic dermatitis and author of the blog dansmapeauleblog.fr. Suddenly, we are given power back because we are listened to. The patient is not an empty container in which to pour therapy. On the contrary, a dialogue must be established ”. Via her blog, she shares her experience with other patients. She is defined more as a resource patient or patient-partner: this is the name of the patient who has acquired solid knowledge of their disease over time, thanks in particular to therapeutic education. It does not replace the caregiver but it promotes dialogue between medical teams and patients, facilitates’expression of other patients and helps improve understanding of the discourse of healthcare teams.
“The psychological impact, particularly of skin diseases, is often overlooked,” adds Dr Charles Taïeb (APHP, Head of Patient Association Relationships FIMARAD Sector). Both patients and their loved ones. Listening to them, involving them, restores confidence and self-esteem. “
The patient’s point of view and his experience are also valuable information for manufacturers and laboratories in the development of their products. Pierre-Fabre notably carried out a very large study (13,500 people from 6 different countries questioned) on the impact of visible dermatoses (skin and mucous membrane disorders) on the quality of life of these patients.
The patient-caregiver relationship is also very useful in the field of research, particularly in oncology. “We have created patient committees, so that patients adhere to what they are going to experience,” explains Marie-Ange Léophonte, director of the Haute-Garonne committee of La Ligue Contre le Cancer. A consent letter explains the details of the protocol, in the simplest possible terms that are understandable to everyone. During the treatments, we try to provide the best possible support to the patients, by making them play sports for example. This has a big impact on their treatment, and we have found that it even decreases the risk of recurrence. “
Other initiatives are emerging. Allan Wilsdorf is the representative of’EUPATI (European Patient Academy) for France. “We are a dedicated training provider for patients and patient representatives on the end-to-end drug research and development process,” he explains. Patient education can change the face of engagement. “Xavier Léost, he took on as a patient-expert and wanted to testify to his experience in helping the youngest thanks to a book he is the author of:” I have had severe eczema for 43 years. , he explains. I had an experience that I wanted to share. My book is about a 9 year old child who has to live with his eczema, especially at school. I wanted to talk about the harassment that you can be a victim of when you have eczema as a child. “