Renin is extended to patients with chronic kidney damage

Until now, the Renine quality registry only collects information about dialysis patients in the Netherlands, but that will soon change. The registry will be expanded to include patients with chronic kidney damage (CNS) stage 4-5 (eGFR < 30 ml/min).

To gain more insight into the quality and outcomes of care in patients with earlier stages of CNS, Nefrovisie and the registration section of the Dutch Federation for Nephrology (NFN) are working on an extension of Renine. This is in line with the Outcome-Oriented Care program of the Ministry of Health, Welfare and Sport.

A minimal set of clinical data (including lab results, hospitalizations and survival) and patient-reported outcome measures (PROMs) has been established to be included in the registry. In addition, information will be collected on the choice of conservative therapy in end-stage renal failure, concomitant conditions, medication use and clinical factors such as weight and blood pressure.

In order to keep the registration burden as low as possible, only data has been selected that is contained in electronic patient files (EHRs) and it is examined with various EHR suppliers whether this information can be automatically retrieved from the EHRs. The aim is to start the data collection of CNS patients this year in a number of pilot centers, so that the new set of data can be supplied by January 1, 2023.

On June 29, Martin de Borst, Marc Vervloet and Liffert Vogt will tell you about the highlights of the ERA-EDTA Congress during the ERA-EDTA Highlights webcast in one and a half hours.