The screens of the Atheneum, Rare diseases and disabilities, the role of caring parents – LEDI – Laboratory of economics and management

The screens of the Atheneum, Rare diseases and disabilities, the role of caregivers

The team of the multidisciplinary research program on the help provided by helping parents of children with rare diseases and / or disabilities and the repercussions on their professional life (CASEPRA projects –Pil and CASEPRA) is pleased to invite you to a film-debate around a selection of short fiction films featuring the experiences of parents with disabilities.

This meeting will take place on November 25, 2021 at 7:30 p.m. at the Atheneum in Dijon.

If the films that we wish to present to you in November come from various horizons (United States, Italy, France, United Kingdom and Taiwan), all tell us about the universality of being the parent of a child with a disability. . And nothing like fiction, when it is faithful to reality, to show an intimacy that takes place far from the gaze of the cameras, the media and therefore the general public.

The screening will be followed by a period of discussion and debate with the audience. Anaïs Cheneau, health economist and member of the CASEPRA project and Lorraine Joly, psychologist at the genetics center of the Dijon University Hospital, will be on hand to answer your questions.

More information on the short films:

  • AGGRAPPATI A ME (Hang on to me) by Luca Arcidiacono (19:40) Italy – 2018

  • MY DAUGHTER YOSHIKO (Ma fille Yoshiro) by Brian Blum (16:39) United States – 2018

https://www.brianblumfilms.com/my-daughter-yoshiko

  • DUKE by Thiago Dadalt (16:29) United States – 2018

  • WILL TO FLY by Hsiang-Te Shih (13:33) Taiwan – 2017

  • TENDRE HÉRITAGE by Florent Brischoux (16:53) France – 2017

More information on the Extraordinary Film Festival: https://teff.be

More information on the CASEPRA project:

The research program on the help provided by parent-caregivers of children with rare diseases and / or disabilities and the repercussions on their professional life consists of two projects:

  • The CASEPRA- projectPil(9 months) is the winner of the “Human and Social Sciences and Rare Diseases” 2020 ”call for projects from the Rare Diseases Foundation.
  • The CASEPRA project (30 months) is funded by the CNSA within the framework of the IReSP 2020 “White (session 11)” call for projects.

The research carried out is multidisciplinary and participatory. They bring together academic research teams in economics (Aurore Pélissier – LEDi, University of Burgundy; Clémence Bussière – Erudite, University of Paris-Est Créteil Val de Marne and Anaïs Cheneau -CREG, University of Grenoble Alpes); a sociology research team (Marc Fourdrignier – Cérep, University of Reims Champagne-Ardenne); two national rare disease health sectors (AnDDI-Rares sector and DéfiScience sector); a rare handicap relay team (Rare North-East Handicaps Relay Team); two associations (UNAPEI and E-Norm). The projects fall particularly within the research carried out by the LEDi’s Health Economics Team, the activities of the health group of the Maison des Sciences de l’Homme in Dijon (University of Burgundy), and those of the FHU Translad.

https://ledi.u-bourgogne.fr/toute-lactualite/451-projets-de-recherche-caseprapil-et-casepra.html

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