What the latest regional survey said about how people with fibromyalgia and chronic fatigue live

More than 100 people with this pathology explained what they must face thanks to this disease

It is estimated that between 2 and 4% of the world population suffers from Fibromyalgia and Chronic Fatigue Syndrome, a difficult-to-diagnose disease that amplifies pain sensations by affecting the way the brain and spinal cord process pain signals. The Fibroamerica Associationwith motif of World Fibromyalgia and Chronic Fatigue Syndrome Daymade a regional survey that warned what are the main triggers that worsen the symptoms, for how long these signs extended and what daily activities were affected by the pathology.

According to the responses of more than 100 patients (mostly women) with fibromyalgia from Argentina, which also had a replica in Chile at the hands of COFIBROCHILE (Chilean Fibromyalgia Corporation), “1 out of 4 people with this pathology felt bad the seven days of the week prior to the survey”, while they detected that the main triggers were “emotional or physical stress, changes in temperature and sleep disturbance”.

“Our research, carried out within the framework of World Fibromyalgia Day, was carried out to know the importance of patient intervention in coping with the disease, training, management strategies and their influence on quality of life and inclusion”, he explained Blanca Mesistranopresident of Fibroamerica.

A regional survey that warned what are the main triggers that worsen the symptoms, for how long these signs extended and what daily activities were affected by the pathology (Getty)

In this sense, the head of this regional organization assured that the research sought to learn about the possibility of avoiding triggers and how this situation improved symptomsin addition to the implementation of a plan in conjunction with your treating physician to address this issue.

Patients often have pain in places where there is no reason for pain., bruxism that makes the jaw hurt and generates headache, dizziness and neck pain, irritable bowel syndrome, chronic fatigue syndrome -from sleep disturbances-, irritable bladder syndrome and fibrofog, which is the difficulty in evoke certain words quickly. All this notably affects the quality of life of those who live with fibromyalgia”, listed the doctor George Pujol, clinical sports doctor and master’s degree in Psycho-immuno-neuro-endocrinology.

From Fibroamerica they explained that, Frequently, patients must face challenges with their loved ones or even with their specialists “so that they understand the dimension of their illness and trust what those affected transmit, since they do not present physical manifestations”. Being that it is estimated that “between 2 and 4% of the population lives with fibromyalgia or chronic fatigue syndrome”, which is more frequent in women (in a ratio of 20 for each man).

The diagnosis of fibromyalgia is given based on validated clinical criteria. The cardinal symptom is the presence of widespread chronic musculoskeletal pain in the region of the shoulders, neck, and hips. It can also give joint pain, but not true joint inflammation. Besides, It is accompanied by other comorbidities and very frequently by depression and sometimes chronic fatigue syndrome.”, explained the doctor Osvaldo Daniel MessinaHead of the Rheumatology Department of the “Cosme Argerich” Acute Hospital.

In that sense, the expert who also works as a professor of the specialty at the Faculty of Medicine of the UBA, highlighted: “Fibromyalgia is one of the most frequent reasons for medical attention in daily rheumatology practice and the second cause of consultation after osteoarthritis.”, for which he warned that it is very important “its recognition and diagnosis both for adequate treatment and to avoid requesting unnecessary studies, since It is very common for patients to make multiple consultations until the diagnosis is achieved.”.

According to the data collected by the regional survey carried out by the Fibroamerica Association, which involved the testimony of more than 100 people affected by the pathology94% of patients were able to identify the factors that triggered their seizures and that these were mostly triggered by emotional stress, physical stress and unrefreshing or insufficient sleep”, he highlighted. Mesistrano.

That is why the head of the regional association reported: “6 out of 10 respondents (64.5%) stated that controlling triggers reduced symptoms. But when we inquired about the dimension of the decrease, in 57.8% of the cases it did not exceed level 5 on a scale of 0 to 10, with which the affectation of the quality of life, although lower, is still present. ”.

“Another fact that emerged from the survey was that In general, they were unable to establish a plan together with health professionals to implement strategies to avoid triggers.”, he added Mesistrano, who is also a fibromyalgia patient. While Pujol explained: “Without a doubt, the main triggers are stress and insomnia. Therefore, to prevent this from happening, we recommend promoting all actions that lead to restful sleep and not hesitating to use the pharmacological measures indicated by health professionals if necessary. The same to combat the symptoms of fibromyalgia, for which we have effective pharmacological alternatives”.

From the Fibroamerica Association they also pointed out that For “the diagnosis and treatment of fibromyalgia and diseases associated with central sensory syndrome, it is important to have health professionals trained for this purpose and willing to work in an interdisciplinary manner with other specialties, which contributes to a better management of these patients”.

Regarding the difficulties in carrying out daily activities, the results of the survey showed that: 6 out of 10 (57%) reported difficulties going to work and climbing stairs; 1 in 2 faced complications walking a few blocks (50.5%), attending social gatherings (53.3%) or making beds (47.7%). It’s more, 7 out of 10 patients (69.2%) reported that they felt bad at least five of the seven days of the week prior to investigation, highlights the document.

“In a world that is emerging from the pandemic and entered a war, humor, warmth and serenity are essential to achieve the necessary balance for us,” Mesistrano assured and concluded: “It is difficult to implement balance when we feel that everything it transforms and we are sick, but it is essential to have self-management tools for the disease to prevent and alleviate crises when triggers appear”.

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