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Family Battles Rare Disorder: Funds Needed for 2nd Child

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Nearly 7,000 rare diseases affect over 300 million people worldwide, and the price tag for treating just one – Spinal Muscular Atrophy – can exceed $2.1 million. This isn’t a distant future scenario; it’s the stark reality facing families like the one in Singapore desperately seeking to save their five-month-old daughter, Ginny, from a devastating … Read more

Baby’s Rare Disorder: Family Needs $2.4M for Treatment

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<p>Nearly 80% of rare diseases are genetic in origin, impacting an estimated 300 million people worldwide. But for families like Ginny’s in Singapore, facing a diagnosis of Spinal Muscular Atrophy (SMA), the fight for life extends beyond medical intervention – it’s a desperate race against a multi-million dollar price tag. The recent public appeal for … Read more

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